Im tired of seeing harqulin Ichthyosis every time I type it into a search engine. Yes that is the worst type. And yes it does happen. But what about all thw other types? I have a TYPE of Ichthyosis. But that doesn’t mean I am that Ichthyosis in the search engine. Don’t get me wrong I feel for those families who took the picture. But I dont want to be defined as THAT. I have Ichthyosis. And I am BEAUTIFUL damnt. Those babies are a blessing every second they get to live. But I will take a minute to be selfish. And not be defined by a search engine. Yes this SUCKS. God does this suck. But its not as horrifying as Google leads you to believe. I have a TYPE. And yes I identify with Ichthyosis. But here’s the thing. I decided to Embrace it. Its a daily struggle with the looks I get from strangers. But the daily love I get from those closest to me make it ok.
For those of you like me: your not alone. WE ARE BEAUTIFUL. We are ok. We are normal. There is nothing to be ashamed of. We are NOT alone. WE ARE STRONG.
I hope you find this in your search engine. I hope this pops up every time you look up Ichthyosis. I hope we can build eachother up. The only thing that separates us from others is a few extra layers of skin. The way i see it, its thr same thing as being black or white. Talbot short. Male and female. Straight or gay. Brown hair or blonde. Blue eyes or brown eyes. Who cares? Were HUMAN. We all have a heart. We all have lungs, livers, bones, a brain, a skull. We all have skin. Some just have skin thicker than others.